Showing posts with label roles n responsibilities. Show all posts
Showing posts with label roles n responsibilities. Show all posts

Thursday, May 19, 2011

Is she persistent or simply irritating?

Well, I am pretty sure many professionals contemplated with that question when it comes to me. I have met some mothers who trust in the system, and believe that since they are paying for the service, they don't have to do any thing more, but trust. When Ivan was schooled at ****, I used to sit and wait at the lobby for his lesson to be over. There I would meet some other mums who do likewise. We get to talking and they find that, they want so much more for their chidlren, but don't know where to start.Yes, we should trust the professionals, but aren't we the client. Should we not know what we want. If you go to a restaurant and place and order for a steak, but get lamb chops instead. Would you simply say that it's okay?

Why then, should you in any way compromise for your child? In schools, we are advised that parents should not sit in the sessions, as the chidlren may get too anxious, in our presence and fail to participate. Fair enough, but they never stated that parents were not allowed at the premises. The concern was for the child's benefit.

No parent would want to upset their children, but that are ways to get things done. Have a rapport with your child's teacher/ therapists. Establish gracious communication between the two of you. This was you both can optimize your effort as  work together, to help the child. I had informed my son's teacher, that I would like to observe my boy occasionally, to see his reactions. She understood my concerns and she positioned my boy with his back facing the door, as she taught. This arrangement allowed me to glance into the classroom through the glass window on the door. I never entered the classroom. The teacher had no problem, as I was not being an obstacle to her teaching. This way, I could also gauge how comfortable my son was, with the teacher. Body language tells a lot, my dear.

The other mums always asked me why I had special permission to go up to the classes, and why I did so. I didn't have any privileges they didn't, I just spoke my concerns and arranged it such. As for why I did, so, I did it to ensure my boy was in good hands. I was blessed to know that Ivan had a good teacher.

When Ivan started, he was simply doing table task in the classroom. The teacher felt that he needed to be comfortable enough to trust her, before they had activities outside the classroom. Some time went by and Ivan was included into the school assemble period. Where he would assemble with the rest of the school, to fulfill his patriotic duty of singing the National Anthem and the Pledge taking. His teacher and I would watch him with pride, as he stood through this.

Then one of the parents asked me, what arrangements I did for Ivan to be at assembly. She wondered, as her boy had been there six months prior to Ivan and was still not given that opportunity of inclusion. Her son was older, and was not a very violent boy either. He should have been given an opportunity to try this out.

I enlightened her, that this was totally, Ivan's teachers doing, not mine. So I advised the parent to check with her boy's teacher. The next day, the parent shocked me with her teacher's respond. "Your boy is not at assemble, cos it's not like he was going to learn anything, right?". The mum was hurt, and was heart-broken when she shared this remark with me.

I was furious, how could the teacher say that. Even if he wasn't going to learn anything, according to her, shouldn't he at least try it out? It wasn't like they were going to lose anything. I told the mum that she should stand up for her boy. There are so many things her boy could benefit, with this inclusion. I shared with her on the benefits of inclusion with the group. Then I equipped her with some child development jargon to use, when she met the teacher again.

The teacher got defensive, when the mum approached her (with a better understanding she now has), that he son should have this opportunity to be included at assembly. Seeming that she was showing concern, and using the jargon she used. The teacher agreed to include the boy into assembly.

That boy would have missed so many opportunities, should the his parents just accepted what the teachers said. Sometimes, the teachers may be busy, or they could have become complacent doing the same job for years. But children should never be at the losing end for what ever the reason. I was marked as the mum who was making waves, and soon became infamous, there. But I had no problems with my son's teacher and didn't bother about it.

It's all about advocating for your child. In order to do that, you first have to equip yourself, with as much information as you can, regarding your child's diagnosis. Talk to people and read up. Be polite when you approach professionals, your humidity can go a long way for your child. Be persistent, but sometimes, it may seem that you are a nuisance. I didn't mind the names, so long my son benefited. 

When I was trying to get Ivan into a school once, they told me to call back in a week's time to check for vacancies. I did and did so every week. I know they hated it. But it paid of after a couple of months. When I called, the supervisor told me, that they had just received a letter of withdrawal and was about to find a child to replace the withdrawal. My call helped my son get that place. But please be as polite as possible, when you want to be persistent. The teachers do know that with limited resources, we are all waiting for our turn. But we don't want them to deliberately miss our child, as we had been rude to them, over the hundreds of calls made.

So if you are a parent who is new to this, keep these pointers in mind.
  • Always liase with the teachers, which ever way suits you both (communication books, emails, smses)
  • Check on your child when you can without disturbing the class (only if your child is having a one to one session)
  • Be polite to the professionals, they are helping your child
  • Ask questions and give them some time to get back to you, gentle reminders should they forget
  • It would not hurt to encourage them with gifts/ thank you cards (wink you know what I mean)
When you advocate for your child, you widen the horizon for his/her future, open doors of opportunities for them, challenge the system to improve itself and fight for your child's individuality. They deserve so much more, we give them our best, as we speak for them. And one day when we are no longer, our legacy lives on through them.

    Saturday, May 14, 2011

    Updates

    Just like any company, updates are essential for progress. So if you are the parent in charge of the meetings and therapies, you should keep your spouse updated from time to time. This way your spouse will not feel left out of the loop. 

    Since Peter works abroad, it is difficult to keep him updated all the time. The time difference is also another obstacle. Future more, I can hardly update him on everything in about five minutes. So I decided that I shall start a blog. This way, I can update information on a regular basis, and Peter can read the updates, on his time, without disturbing my routine /sleep.

    Wednesday, May 4, 2011

    Who is doing more?

    Sometimes, one parent may feel that he or she is is doing so much more than the other parent. Try to think that you both are working as a team for your child against the autism (in my case). My my case, I find myself doing a lot, as Peter works abroad.

    credit

    I sometimes get very angry that I am left here all alone, doing so much. But then one day, during our time alone, we talked about this. I then realized that Peter was doing a lot too, just that he was doing it away form home. He is working hard, away from home, so that we could afford all the therapies that Ivan needed.
    When the time came that we needed to know more about Ivan's condition, I went to future my studies, in the area of Special Education. And I could only pursue that since Peter could pay for it. So, I later came to appreciate the fact that Peter was doing what he could do best, provide for us. When I started to appreciate his efforts, I started to do what I do happily. I realized that we were a team, and there was no one doing more than the other. And together, we are able to provide more for our kids. More finances, more opportunities, and with understanding, more love.

    What's my role?

    Responsibility. The word itself, is so burdensome. Everyone has responsibilities, every parent has responsibility and obligations to their children. But aside from the normal expectations, a family requires, parents of children with special needs have to ensure proper segregation. If the load is not divided evenly, then, one person will be over loaded and it will be truly overwhelming.
    We all have areas we are better in and areas that we are not so well versed in. (strengths and  weaknesses) It is very overwhelming for one parent to do so much. I know, as I tried to be superwoman in the past. I was so paranoid that my hubby was so relaxed that I took on too much of responsibilities. I started going so crazy that I broke down in a matter of time. Thankfully, Peter was there to help me pick up the pieces. He is sweet that way, he stands by me and watch me go crazy trying to so everything, then when I crack up, he comes in to pick up the pieces.

    Here are the roles that I take up:
    • Meetings at school and hospitals 
    Since I am his main caregiver, I can furnish important information to educators and health care professionals.
    • Daily routines, acceptable behaviour
    Routines are very important to stablize children with autism. Seating at the dinner table, and table etiquette are all important to be taught. And need to be done consistently.
    • Homework and acedamics
    When Ivan has homework, I am the one who sits down with him. He knows that when I teach him, I go into teacher mode. And he gets that. Mummy mode comes later, when we cuddle.  Since I am an educator, I fit well with teaching Ivan. And I have to always find new ways to teach and engage Ivan. 

    Peter's roles:
    • Fun time with boys
    • Playground fun and exercise routines
    • Teaching of toileting routines and shower
    Since Peter is more a fun guy, he is in charge of the physical (fun) aspect for rouitnes. Also, since Ivan is a boy, Peter settles the toileting routines with Ivan. Since, Peter works aboard, when ever he comes to town, he gets into his roles. I sometimes, get him to take over some of my duties too, so I can catch a break. And Peter always obliges me, as he knows that I so need a breather. And he sees all these teaching time as an opportunity to spend quality time with his boys.